the 9th again

Today is six months. Six months since we said goodbye. Can it really have been half a year already since I held you, since I let you go? The significance of today rushed in early this morning, as I was getting ready for work. The tears hovered in the corners of my eyes, but I did not have time for them then.

Work was too quiet, far too little distraction, and the tears continued to spring up in unexpected moments of silence with a persistence that they haven't had in months. I was barely able to get on top of them, and I realized that I was feeling that weight again, the gravity of everything that has happened, everything I am missing.

I am trying to shake myself free of this weight, as I should really be rejoicing. We found out this week that your sibling is, in fact, a brother, and so far, he is healthy. He flaunted his beautiful spine and healthy brain, and while I am beyond thrilled that I will have the honor of chasing after him as he makes use of those fully functional legs, I feel as if I am grieving the loss of you all over again.

If I am in fact capable of making a healthy baby, why not you? Why couldn't you have had a healthy brain and a beautiful spine too? There is still so much guilt there.

We always imagined we would have a daughter first, and we did, I just never realized it would be like this. I didn't know that we would never get to raise you, that we would have to say goodbye without ever getting a chance to know you. I never dreamed that I would be telling your brother about a sister he will never meet.

I miss you.

resurfacing

I don't know what it is--maybe all the writing I've been doing, maybe all the thoughts that seem to be constantly zipping through my head, maybe the hormones that are pulsing through every inch of me--but the grief has been resurfacing a bit this week.

All week I have been feeling uncomfortable in my body. Stir crazy, almost, except that I can't escape it, it follows me everywhere. I get incredibly angry at the tiniest things, just like the early days. The house is a disaster and needs to be unpacked, cleaned, vacuumed, and yet I can't bring myself to be remotely productive. I did 2 loads of laundry today (well, more like 1 and a half) and justify to myself that at least I accomplished something.

And then I read and remember and cry, and yet I can't cry as hard as I want to. And then I get angry at myself because there is the new baby fluttering in my belly, and I should be rejoicing in these moments, cherishing them, because next week we learn whether this baby is healthy, and the world could easily come crashing down again, just like that. The wait is agonizing, because do I even really want to know? Certainly if there is bad news to be heard, I would rather pass.

I am tired. Pregnancy is wearing me out, even though I have had an easy one so far, and I am frustrated since I went through all of this not so long ago and all I got was a tiny box of ashes and a big gaping hole in my heart. I want to scream at the next person who tells me how much my life is going to change, how hard it's going to be when the baby comes. I doubt it will be worse than giving birth to a dead baby. I want to tell them that I will gladly, enthusiastically, give up every second of my free time to tend to a screaming baby with a fully functional body. Don't talk to me about hard times until you have held your child's cold body and lived to tell about it.

And since I have been spending so much time wasting my day on the internet, I came across someone who just received a poor prenatal diagnosis and has decided to carry to term. Which is, of course, a completely admirable choice that I respect totally. But then I read all the comments, everyone commending her for making the "right" choice, for being so brave, and I started to get angry. While it may be the right choice for her, there is no overall, black and white, right and wrong about the decision that was handed to her (us). And why is it that those people who choose to carry to term, no matter what the outcome, are celebrated and praised for their bravery and strength, while the rest of us, the ones who make the other choice, are quiet, usually giving few details about our situation for fear of being judged by even our closest friends and family? What is THAT? Are we not equally strong and brave in making the choice to let our sweet, much loved babies go? What is the right choice for one person may not be so right for the next, and it often shocks me that so much of our society is so small minded that they cannot fathom such a basic concept.

I am getting to that point in my healing where I want to be a voice, I want to make people understand, I want people to realize just how common it is. And at the same time, I wish I didn't have to. I wish I was nursing a 6 week old, not knowing that it all could have been different.

Maybe a shower will wash some of this insanity out...

birth? death? birthdeath?

It has been almost six months now, and I have yet to find the words to write the story of your birth. Not ironically, it is those moments--the last flutters, the foreign sensations, the tears, the cradling, the love, the heartbreak--that lurk in the corners of my mind, presenting themselves at the most awkward times and bringing me back. Bringing me right back. Six months of wrangling such memories has taught me to give them boundaries, however. I do not dismiss them, as that is essentially impossible, but instead I tell them to wait. Not now. I will deal with you later. I will visit you again when I have time, space. I will visit you when I can feel that pain with the intensity I need to, when I can cry those tears freely, as long as I want, because my baby died, and I'm not over it.

But I am okay. In my logical mind, I know that everything is as it should be. I know your soul is whole and well and part of my life for a very important reason. We probably planned it this way. And yet, that very human, very mortal part of me, that instinctual mother, does not understand. They say when you have children, it's like watching a piece of your heart walk around outside of your body. It's like that, exactly that, only you are gone, and so is that piece of me. There is an emptiness in this world, my current, tangible reality, that will never be filled.

And still your little life, your death, your absence, have changed me in ways I could not have imagined--changes that I am now grateful for, that I would not give up if I had the chance. Your birth and death were a beginning and end for me, too.

I started to write it a couple weeks ago, and it just comes out wrong. I cannot find the tone, I can't find the words. Do I just write it, the standard play-by-play of events that traditionally ends with pictures of squirmy newborns, a lament about sleepless nights and the new found love that comes with the discovery of your child? How do I put it that, in the moments after you were born, everyone was crying but you? That I witnessed my own father cry for the very first time? That there were no apgar scores or measurements, just a nurse bringing you in your blanket and asking if I wanted to see your defect? How do I explain the last time I felt you move, that I still wonder if it was the last time you moved at all? Are there even words?

a hope and not a promise

I was so honored to learn that I was chosen for the spring award at Glow in the Woods this morning. I have found so much comfort in the writing there over the past 6 months, and to think that others may benefit from mine as well is a wonderful feeling. It is a group that I wish none of us ever had to belong to, but I am so grateful to have found it.

The award prompted me to read through your letters again--something I rarely do. As I said in my very first post: sometimes I want to reach out and grab someone and make them understand, bring them with me to that place and make them feel the terror, the sadness. The heartbreak.

I certainly succeeded, at least with myself. Every post took me right back to those moments, quickly reintroducing me to that dark gaping hole that I have so successfully been distracting myself from. It was if I was reminded: oh yes, this happened. Oh yes, it hurts. Oh yes, it will hurt forever.

And then I get angry. How could I have let myself forget? I think of you every day, and yet I somehow manage to evade that all too familiar, consuming heartache that goes along with your memory on a daily basis. How is it that the flood of tears that came today, the gut-wrenching sobs that are seemingly beyond my control, have come to feel right? Necessary. Comfortable? Perhaps it is that they are all I have left. If I am not grieving you, then did you really exist?

We moved out of the only house you ever lived in last week. It was the same house that became my refuge, my cave, the one place that I was allowed to stay in my pajamas for days and just miss you, after you died. As I swept every particle of dust out of the empty corners, I found pockets of grief that had slipped under furniture, waiting for the moment they might be visited again. Every inch of the house had an energy in it, and it was bittersweet leaving it behind. We are embarking on lots of new beginnings this year, and yet I cannot bear the thought of putting your life, your death behind me, into a dusty mental closet of bad memories. You are more than that. You will always be more than that.

The weeks are ticking away in the pregnancy with your sibling, and I find myself starting to wish time away again. I want it to be July, when we will learn if the baby's spine is closed, I want it to be December, when (God willing) I will hold the little one, I want time to pass for this and that until some little voice kicks in and screams in my head STOP! This could be all you get! And I try to cherish it, but there is still so much uncertainty.

People ask the incessant, obligatory question, "how are you feeling?" and I have little to say. I tell them I am tired, mostly, and they laugh and say "nap while you can, those days are numbered!" I smile, because that is the only appropriate response, but inside I am saying "yes, I can only hope to be so lucky." I can only hope to be spending sleepless nights with a screaming, healthy baby, the kind that most people take for granted.

I can only hope.

I love my baby no matter what

Termination.
Ter`mi*na"tion\, n.

1. The act of terminating, or of limiting or setting bounds; the act of ending or concluding; as, a voluntary termination of hostilities.

2. End in time or existence; as, the termination of the year, or of life; the termination of happiness.

The word felt dirty to me, wrong in my mouth, for the longest time. To this day, I hesitate before saying it out loud. It is so harsh, so final, so totally void of the emotion and agony that went into the decision. Certainly, in the early days after the diagnosis, I resented the word, I danced around it, always calling it something different, because it was different, it had to be. In genetic counseling, it was always "ending the pregnancy" or "interrupting the pregnancy," as if those were any better. I worded it in any other way I could find, I still do. But then there it was, scribbled all over my discharge papers from the hospital, closely followed by fetal anomaly, fetal demise, 21 weeks.

It wasn't until one day, after the diagnosis but before your birth, when I decided to type the word, hating every letter, into the search field of the Baby Center Community, that it began to resonate with me. There it was, a group full of people going through exactly the same thing I was. Suddenly I was not alone. I was not a monster for even considering it.

I cringe when I see people say that termination would never be an option for them. It was not an option for me, either. Even in the initial phone call when Patricia mentioned that the specialists would be discussing my "options" with me, my head spun. What options? This was my baby. There were no options.

And then...well, everything changed. What happens when all the options are awful? What happens when life is not necessarily the best option for your own child? What happens when you have to choose their well being or yours? Just like any mother, you choose your child's.

There is so much misunderstanding surrounding termination for medical reasons. Those who have never been in our shoes and never plan to be, claim that they will love their babies no matter what. As if the decision is simple, black and white: if you love your baby, you will keep them, no matter what. But choosing to let a baby go is perhaps one of the hardest, most sacrificial demonstrations of love there is. I do not know of anyone who has taken the decision lightly. Choosing to let a baby go who would otherwise be born into a life of suffering (or no life at all) is a sacrifice. I will suffer my whole life so that you do not have to feel one moment of pain. I will spare you, even though it hurts more than anything I could ever have imagined. I carry the weight of this so you will never have to.

It is not easy.

As we get further into the pregnancy with your sibling, I have been thinking a lot about how I will handle things if there is a problem again. Some part of me wants to say it doesn't matter, I will keep this baby no matter what. But then, does that mean I love this baby more? And if I consider putting my own well being before this baby's, does that mean I love this baby less? It is so tempting to say that love has nothing to do with it, but essentially it is all about love. You are both my children and I am constantly humbled by the amount of love I am capable of in my new, unique motherhood.

I love you both, no matter what.

I'm a mess today. It's been creeping up on me in the last week and seems to have culminated into this huge overwhelming feeling of hopelessness today.

I have been doing so well. Even after Jesse lost his job, I was hopeful, confident that it was all part of the Big Picture, that it was probably meant to lead us to something better. But as the time continues to pass and the "better outcome" I was hoping for seems less and less likely, my optimism is admittedly suffering. In fact, I am starting to wonder if anything is ever going to go right again.

And it's things like these that begin to loosen the stiches of the patches I have so carefully sewn over that dark, gaping hole you left me with. I start to feel that bare, vulnerable, empty place again, and it makes me realize that this is far from over. That this will never be over, not really. Perhaps someday I will patch the hole more permanently, but it will never be gone.

Tomorrow it will be May. May, which still conjures a bit of anticipation somewhere in my heart. It is the month you would have been born, the month I began waiting for way back in September. It's hard to imagine how different things would have been if it had all gone according to plan. I try not to hold on to that image, because you were not well from the beginning. It wouldn't have been as I expected no matter what. I just had so many expectations. I should have known better.

So this May we will be seeing your little sibling for the first time, who took up residence a few weeks ago. Naturally, I am fearing the worst, just as I did with you, but more so this time. It's funny, in the weeks and months after your death, I became obsessed with the idea of getting pregnant again. On some subconscious level, although I tried to convince myself otherwise, I believed it would fix everything, that it would fill the big empty hole you left. But it didn't. It won't. You are not replaceable. Even getting the chance to experience pregnancy again did not come with the joy I expected it to. That blind, hopeful happiness I had with you is gone, probably forever. In its place is uncertainty and a complete and utter lack of expectations. Oh and a big empty hole that makes its presence ever known.

I'm just so sad Layla. I want you to be safe in my belly, getting ready to be born. I want to hear you cry, to see your eyes, to snuggle with you. Some days I still feel like I could wake up and realize this was all a dream.

conception

I knew I was pregnant with you before the test told me so, even though I was in some state of denial before I got the proof. I remember going to lunch with my dad in that seemingly never ending inbetween time and feeling as though I was going to gag on the chicken in my tortilla soup. I remember the nagging voice in the back of my head saying "see! You're pregnant! You are!" and I felt like I would burst with the desire to tell someone, anyone, about the possibility of you. But I didn't. In fact, even though I could not hug anyone without the feeling of fire across my chest, and I could smell a simple piece of peanut butter toast from the next room so strongly that it was dizzying, I could not believe it.

It was not the time, after all. We were supposed to wait. I thought of my old manager, who had fallen pregnant unexpectedly, telling newly-engaged me to watch out: once you are married, it happens more easily. I didn't know what she meant at first, but soon I got it. The security and societal acceptance of marriage makes you lazy, more willing to take risks. Suddenly, in the midst of analyzing every twinge in my body, I knew all to well how she must have felt.

I was excited. Well, excited doesn't even begin to touch the surface of it, really. My biological clock had swung into gear a full year before and you were the manifestation of my wildest dreams. I knew it was not a good time to try for a baby, but I prayed for it to happen by accident.

It was September 9th when I found out that you did, in fact, exist. After an ambiguous line the day before, Jesse insisted we get the digital tests. He wanted it in black and white, no more analyzing little pink lines. I woke up earlier than usual, anxious to know for sure, and my heart pounded in my throat as I watched the little hourglass begin to flash. At some point, I turned away from it, the anticipation too overwhelming. "It's going to say Not Pregnant," I told myself about a million times before turning around. When I finally did, I glanced at it a few times before picking it up to examine it more closely, sure I had missed the "Not" part of it. But there was definitely only one word across the display.



I loved you from that moment on. I did not know that our time together would be so short or that you would change me in ways I could not have imagined. I loved you. I still do, every moment.